Emily Parsons, 22, was told the devastating news that she had a rare type of cancer that affects the central nervous system and brain.
Just after her birthday, doctors diagnosed her with the highly aggressive and rare Diffuse Midline Glioma, and later said she has 'limited time to live'.
Less than 100 people are diagnosed with this type of tumour in the UK each year, and most are between the ages of three and 25.
She has bravely shared her story in a bid to raise funds for research so "loved ones face a more positive future".
Emily said, of those diagnosed: "Sadly, all of them will die".
Her JustGiving page reads: "There have been no advances in treatment for this type of tumour for over 40 years.
"This needs to change so that other people and their loved ones face a more positive future and my real hope is that a cure can be found one day.
"In view of the rarity of the disease, there is limited information available which myself and my family have found difficult."
Emily knew something was wrong but it took multiple GP appointments across several months before she was referred to a specialist.
However, for her cancer, early diagnoses would have been unlikely to make a difference to her prognosis.
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But she warns for other cancers it could make a difference to the outcome.
She says: "We all know our own bodies, so no matter what your age, if something doesn’t feel right, don’t delay seeking professional advice, and don’t give up until someone listens to you."
Funds will be donated to support a research project taking place within Cancer Research UK's Children's Brain Tumour Centre of Excellence in Cambridge's Addenbrookes Hospital.
It's also being jointly funded with Great Ormond Street Hospital and Brain Research UK.
To find out more and donate to the fundraiser, click here.
The cause is close to Emily's heart as it is researching the type of tumour she has, and taking place where she received treatment for her condition.
The 22-year-old also said she had future aspirations to be a primary school teacher and adores working with children, so the project taking a focus on children's tumours felt like a 'perfect fit'.
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